Yesterday I was at the the ortho office because I was afraid that I had injured my weak hip working out. I wasn't there because I was afraid of the chondrosarcoma coming back, more that I didn't want to mess it up more than it already is. I wanted to know that I could do and what I shouldn't. Then Ryan said something that made me think...."It's hard to tell because there isn't a lot of research in endurance exercises with those with pelvic resections...there's not that many of you."
Sarcomahelp.org states that chondrosarcoma is "a rare cancer that accounts for about 20% of bone tumors and is diagnosed in approximately 600 patients each year in the United States." I remember when I was first diagnosed and started researching chondrosarcoma. Because of the rarity of it, there was not a lot on the internet and some of what I read was scary. I remember sitting at my computer while reading how pelvic chondrosarcomas have a poor prognosis and was convinced I was not going to see 45 years old. Thankfully, I found some wonderful people at the Chondrosarcoma Support Group on Facebook and was able to see that coming back from chondrosarcoma was possible. I tried to maintain a positive attitude through my diagnosis, surgery, and recovery, although there were some bumps along the way.
Sometimes I question why I still blog. My stats show that not many read it...hell, besides my hubby, I don't even think my own family reads it, but I always try to remember what it was like searching the internet, scared that I was going to die of a rare cancer, and the blessing of finding my warriors to connect with. Now, I will never have the presence that Elizablest at the Chondrosarcoma Support Group has as she has built and maintains an amazing community of survivors and family members, but I always want to be there for the person who is searching, who is scared, who feels alone. Mountains can be moved, scars can heal, and, in this world, you are never alone.
I remember how I got here, and it's why I do what I do here.